{"id":150869,"date":"2018-08-07T18:54:59","date_gmt":"2018-08-07T23:54:59","guid":{"rendered":"http:\/\/csinewsnow.com\/?p=150869"},"modified":"2018-08-08T07:35:58","modified_gmt":"2018-08-08T12:35:58","slug":"young-patient-receives-adaptive-playground-equipment","status":"publish","type":"post","link":"http:\/\/csinewsnow.com\/?p=150869","title":{"rendered":"Patient receives adaptive playground equipment"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-medium wp-image-150871\" src=\"http:\/\/csinewsnow.com\/wp-content\/uploads\/2018\/08\/Arriana-300x199.jpg\" alt=\"\" width=\"300\" height=\"199\" srcset=\"http:\/\/csinewsnow.com\/wp-content\/uploads\/2018\/08\/Arriana-300x199.jpg 300w, http:\/\/csinewsnow.com\/wp-content\/uploads\/2018\/08\/Arriana-768x509.jpg 768w, http:\/\/csinewsnow.com\/wp-content\/uploads\/2018\/08\/Arriana-1024x678.jpg 1024w, http:\/\/csinewsnow.com\/wp-content\/uploads\/2018\/08\/Arriana-264x175.jpg 264w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/>Jamestown (JRMC)<strong>\u00a0 <\/strong>\u00a0One young patient is smiling now, after she received a new, adaptive playground.<\/p>\n<p>Five year old Arianna Walch, has Batten\u2019s Disease, a genetic disorder of the nervous system. Batten\u2019s disease is rare \u2013 it impacts about 40 people in the entire United States. Symptoms include vision loss, seizures, delayed learning and eventually, loss of skills, according to the National Institute of Health. Children with the disease usually have a shortened life expectancy.<\/p>\n<p>Arianna\u2019s treatment includes an 8-hour infusion of a medication called Brineura, delivered through a port in her head.<\/p>\n<p>Because the disease is rare, few hospitals offer it. Stephanie Walch, Arianna\u2019s mother, says, the nearest location is in Rochester, Minn. \u00a0So every other week for three months, the single mom of six children traveled seven hours to her appointment, waited eight hours for Arianna\u2019s infusion and then traveled the seven hours home.<\/p>\n<p>Stephanie says, \u201cThis medication helps so much.\u201d<\/p>\n<p>On Monday, that changed for the Walch family, as Arianna received those treatments close to home, thanks to Dr. Myra Quanrud, pediatrician, Essentia Health; and the pharmacy and emergency departments at Jamestown Regional Medical Center. JRMC is the 18<sup>th<\/sup> hospital in the country to offer this medication.<\/p>\n<p>Trisha Jungels, chief nursing officer at JRMC, adds, \u201cWe\u2019re really proud of our pharmacy and nursing teams for accepting this new challenge.\u00a0 They are the difference to this family.\u201d<\/p>\n<p>In addition to not having to travel, Arianna and her family also received a second surprise \u2013 a new playground, courtesy of the Make-A-Wish Foundation.<\/p>\n<p>JRMC President and CEO K.C. DeBoer says, \u201cWhen Arianna\u2019s physician approached us about providing this service, we said \u2018yes.\u2019\u201d This will allow her to have care close to home \u2013 and enjoy this playground more. We are glad we can help this kid be a kid.\u201d<\/p>\n<p>The new playground has an adaptive ramp and swing so Arianna can play with her brothers and sisters. Nill Construction even used old turf from the Bison of North Dakota State University to form the base, said Owner Tim Nill.<\/p>\n<p>Arianna\u2019s sister, MiKaila Walch. \u201cI know she was happy before (this playground). Now she\u2019ll be so much more happy.\u201d<\/p>\n<p>To learn more about services at JRMC, visit www.jrmcnd.com.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Jamestown (JRMC)\u00a0 \u00a0One young patient is smiling now, after she received a new, adaptive playground. Five year old Arianna Walch, has Batten\u2019s Disease, a genetic disorder of the nervous system. Batten\u2019s disease is rare \u2013 it impacts about 40 people in the entire United States. Symptoms include vision loss, seizures, [&hellip;]<\/p>\n","protected":false},"author":3,"featured_media":150870,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[25],"tags":[],"class_list":["post-150869","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured"],"_links":{"self":[{"href":"http:\/\/csinewsnow.com\/index.php?rest_route=\/wp\/v2\/posts\/150869","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/csinewsnow.com\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/csinewsnow.com\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/csinewsnow.com\/index.php?rest_route=\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"http:\/\/csinewsnow.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=150869"}],"version-history":[{"count":2,"href":"http:\/\/csinewsnow.com\/index.php?rest_route=\/wp\/v2\/posts\/150869\/revisions"}],"predecessor-version":[{"id":150882,"href":"http:\/\/csinewsnow.com\/index.php?rest_route=\/wp\/v2\/posts\/150869\/revisions\/150882"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/csinewsnow.com\/index.php?rest_route=\/wp\/v2\/media\/150870"}],"wp:attachment":[{"href":"http:\/\/csinewsnow.com\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=150869"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/csinewsnow.com\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=150869"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/csinewsnow.com\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=150869"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}